Our program

The Australian Leukodystrophy Clinical and Research Program offers a variety of options for individuals and families affected by leukodystrophies, along with other conditions affecting the white matter of the brain. With our clinic and cutting-edge research programs, our mission is to ensure that every family has the appropriate support and resources needed to navigate the various diagnostic and therapeutic options available.

Join a study

Our program is involved in multiple research studies that are open to all individuals with a diagnosed or undiagnosed leukodystrophy or white matter disorder. If you are not sure if you are eligible, please feel free to sign up and we will contact you to discuss further.

Research studies include our patient registry, natural history studies, and clinical trials for specific leukodystrophies. Undiagnosed patients may be able to access further clinical or research genomic testing through our program. Click the button below to sign up and we will contact you to discuss further.

Visit an expert

The White Matter Disorders Clinic is based at the Royal Children’s Hospital in Melbourne, Australia and is run by clinical experts in the leukodystrophy field.

Support us

Although our research projects are funded by federal grants, we rely heavily on community support to expand our resources beyond those projects. Contact us to learn how to support the Australian Leukodystrophy Clinical and Research Program.